Showing posts with label NICU. Show all posts
Showing posts with label NICU. Show all posts

Tuesday, April 29, 2008

Josh is coming home!!!

WOO HOO!!!
I am so glad to be finally typing that! Our little boy (ha ha, he has a pound on his brother) is finally coming home! Of course, there is a little caveat...since he is having breathing issues still (apparently his brain is a little immature and is causing immature breathing patterns) he will have to come home on an apnea monitor.

What is an apnea monitor?? Good question, I was wondering exactly myself and did what I do best...search the internet for more info. Turns out this portable monitor will be strapped on when Josh is sleeping and will go off (earsplitting I have heard) if he forgets to breath for a period of time. But from what I have heard, there are more false alarms that actual ones, so it sounds like we will be getting very little sleep until we get used to it. He will need to be on the monitor somewhere between 3-6 months which is not going to be fun, but we gotta do what's gotta be done. And I have a feeling that once he is home, he will do a lot better. I have read that once the twins are back together, the twin that doesn't have the breathing issues will help the one that does. So keep your fingers crossed for that!

So in order to get Josh home, we now have to learn how to use this monitor at the hospital which will take somewhere between 4-6 hours! Holy cow! Plus I have to get trained in baby CPR, which is a little scary, but it is a good thing to know anyway.

All that aside, I am beyond thrilled that our family will be together again. It's been a long 7 weeks to get them both home, and now the real fun begins...how on earth do I take care of two?? Here is the latest picture of Team Gillis, apparently Brody likes the taste of Josh :)

Friday, April 25, 2008

Yet another setback...

Well, we found out today when visiting Josh in the special care nursery that he had yet another sleeping spell, meaning that he can't come home for another 7 days at the earliest. It is such disheartening news to hear that yet again our little boy is not well enough to be home with us :( And now since my due date was April 22, they are going to start conducting tests to determine what is causing his eating/sleeping spells, so hopefully they will get to the bottom of this...

I have to say that I never imagined how difficult it would be to have one boy at home and another still in the hospital. I never thought that I would have my boys so early in the first place, let alone have them stay in the hospital for so long. Brody was in for just over 2 weeks, while his brother has been in for almost 7 weeks. It's so frustrating because I feel that it is a waste of my maternity leave since I am without both my boys and that Josh and I won't get to bond like I have with my little Brody.

With that said, I realize how much worse this could be...Josh could still be in Boston, but we are lucky enough to have him 5 minutes down the road. And the coordinating of schedules is hard enough, it would be downright impossible if he was so far away. We get to see him everyday and watch him grow. But in all honesty, we just want him home.

Will post any updates when we hear, for now I'll leave you with one of my favorite pics of Josh so far...can't wait to take many more :)